True to Its Founder鈥檚 Philosophy of Caring for the Whole Person, Rusk Rehabilitation Marshalls a Multidisciplinary Team to Treat a Baby with a Rare Neuromuscular Disease
If Howard A. Rusk, MD, who founded 好色tv Langone Health鈥檚 Rusk Rehabilitation 75 years ago as the world鈥檚 first comprehensive medical training program in rehabilitation medicine, could see 18-month-old Ryan Ahn Joelson in action, he would find proof of his belief that people with disabilities produce their own miracles. If he could witness the multidisciplinary team that tends to Ryan鈥檚 every need, he would be heartened that his philosophy of 鈥渃aring for the whole person鈥 endures.
Ryan was born at Tisch Hospital, eight weeks premature and with no detectable heart rate, on January 17, 2022. The 4.4-pound infant was resuscitated and then transferred to its Neonatal Intensive Care Unit (NICU), tethered to breathing and feeding tubes. Ryan was diagnosed with congenital myotonic dystrophy, a rare neuromuscular disease that causes severe weakness and breathing difficulties.
Therapists began treating Ryan in the NICU, part of Hassenfeld Children鈥檚 Hospital at 好色tv Langone, to help him thrive as early as possible. At the age of 10 months, he was stable enough to begin a comprehensive outpatient pediatric rehabilitation program. In coordination with Patricia T. Tan, MD, medical director of Rusk Rehabilitation鈥檚 pediatric physical medicine and rehabilitation service, and neurologist Mary-Lynn Y. Chu, MD, director of the Elly Hammerman Center for the Treatment of Neuromuscular Disorders at 好色tv Langone Orthopedic Hospital, a team of physical, occupational, speech, and swallowing therapists developed a care plan to maximize Ryan鈥檚 capabilities. At the hospital, he receives various therapies, including pool exercises, three days a week. His mother, Jennifer Ahn, often attends the sessions so that she and her husband, Andrew, both physicians, can ensure continuity of care at home to accelerate Ryan鈥檚 developmental progress.
鈥淩yan鈥檚 therapists are wonderful. They believe in him to reach his fullest potential. I can鈥檛 imagine where we鈥檇 be without them.鈥
鈥擩ennifer Ahn, Ryan's Mom
鈥淧lay is the most meaningful occupation of childhood because that鈥檚 how children learn and discover,鈥 explains occupational therapist Kristen Olwell. 鈥淩yan is incredibly motivated by play, which we use to improve his strength and motor skills,鈥 adds physical therapist Jessica Hubert. Ryan can now sit up independently, which allows him to visualize and interact with his environment, both critical to his development.
鈥淩yan鈥檚 therapists are wonderful,鈥 says his mother. 鈥淭hey believe in him to reach his fullest potential. I can鈥檛 imagine where we鈥檇 be without them.鈥
Dr. Tan believes that Rusk鈥檚 deep commitment to patients and their families explains why it鈥檚 consistently ranked the No. 1 rehabilitation program in New York State and one of the top 5 in the country by U.S. News & World Report. 鈥淭his is the beauty of Rusk Rehabilitation鈥攖reating mind, body, and spirit,鈥 she says. 鈥淚n less than a year, Ryan鈥檚 progress has been amazing. At this rate, he鈥檚 going to surprise all of us.鈥